Wednesday, February 10, 2016

Knocked Out

Yesterday my daughter had a doctor's appointment with her dermatologist. We have been seeing one and many other types of doctors since she was 3 months old for her severe eczema. For over 10 years I have been researching, trying any and all medications, natural remedies and even crazy witch doctor remedies. We have tried bleach baths, oatmeal baths, less baths, more baths. We tried every lotion you can think of. Even the ones at the fair that claim to have healing emu oils. We have done light therapy, steroids and immunization suppression medication that is made for transplant patients. We have tried it all.

Yesterday I went in hoping that they would lower the amount of medication she is on. Instead I came home with 4 more. I walked out of there feeling completely drained. Like I had been fighting for so long and I got knocked down for the last time. I just can't do it anymore. I'm tired of consulting with doctors and driving to appointments and dragging my kid to blood draws. I'm sick of fighting with my kid everyday to take care of her skin. I'm tired of worrying about getting prescriptions refilled and then having to remember to pick them up. I'm tired of nothing ever really working.

I am trying to get past these feelings. To brush myself off and get back up for another round. And I will. But today it feels impossible. I can't even see where I can draw the strength from.  

2 comments:

  1. I can relate in some way.
    My little sister has Eczema too. Well she is not so little anymore. She is 19 and I would say it gets easier as they get older but it really doesn't. My sister stays up until 4 am sometimes because she can't stand how itchy she feels. All we get from the dermatologist is shots of steroids but we are trying to avoid that. We have tried changing the covers, shower less,shower everyday, keep away from the sun, no peanut butter, no egg, no strawberries. We have tried it all!! it is exhausting and heartbreaking. I can't imagine what she goes through on a day to day basis. We feel your pain you are not alone. And if you ever find something that helps your daughter let us know. We would love to try it, and vice-versa. We can just continue to search for help or more remedies.
    KEEP PUSHING!

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  2. Thank you so much for your comment. It is always so nice to know we are not alone.

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